Establishing the European Norm for the health-related quality of life domains of the computer-adaptive test EORTC CAT Core - Anna Costantini (Autor); Annika Waldmann (Autor); Bernhard Holzner (Autor); Colin Johnson (Autor); Georg Kemmler (Autor); Gregor Liegl (Autor); Krzysztof Tomaszewski (Autor); Matthias Rose (Autor); Mogens Groenvold (Autor); Morten Petersen (Autor); Neil Aaronson (Autor); Peter Fayers (Autor); et al. (2018)
10.1016/j.ejca.2018.11.023
https://www.ejcancer.com/article/S0959-8049(18)31522-3/fulltext
Oryginalny artykuł naukowy
Objective: The European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 health-related quality of life questionnaire is one of the most widely used cancer-specific health-related quality of life questionnaires worldwide. General population norm data can facilitate the interpretation of QLQ-C30 data obtained from cancer patients. This study aimed at systematically collecting norm data from the general population to develop European QLQ-C30 norm scores and to generate comparable norm data for individual countries in Europe and North America. Methods: We collected QLQ-C30 data from the general population across 11 European Union (EU) countries, Russia, Turkey, Canada and United States (n # 1000/country). Representative samples were stratified by sex and age groups (18e39, 40e49, 50e59, 60e69 and # 70 years). After applying weights based on the United Nations population distribution statistics, we calculated QLQ-C30 domain scores to generate a ‘European QLQ-C30 Norm’ based on the EU countries. Further, we calculated QLQ-C30 norm scores for all 15 individual countries. Results: A total of 15,386 respondents completed the online survey. For the EU sample, most QLQ-C30 domains showed differences by sex/age, with men scoring somewhat better health than women, while age effects varied across domains. Substantially larger differences were seen in inter-country comparisons, with Austrian and Dutch respondents reporting consistently better health compared with British and Polish respondents. Conclusions: This study is the first to systematically collect EORTC QLQ-C30 general population norm data across Europe and North America applying a consistent data collection method across 15 countries. These new norm data facilitate valid intra-country as well as inter-country comparisons and QLQ-C30 score interpretation.
Keywords: pedagogika